Power of Data Sharing

Reading time: 3 minutes Patty Spears One of the most valuable contributions a patient can make to science is to donate tumor tissue for research. It is important to use the tissue in research in a way that respects the intentions of the patient who donated it.  Tumor tissue can continue to add value to... Continue Reading →

Why Can’t I Be in This Clinical Trial?

Reading time: 5 minutes Patty Spears There are many barriers keeping patients out of clinical trials, even if they want to join the clinical trial.  There are multiple steps along the way and each step is a hurdle for patients.  A patient must first have physical access to the trial (structural barrier).  For example, I... Continue Reading →

Words Matter

Reading time: 5 minutes Patty Spears When talking to, or about patients, words matter.  Words can hurt and make patients feel blame or guilt about having cancer.  It’s not usually done on purpose, so with increased awareness of what words mean to patients, everyone can be a bit more conscientious about what they say and... Continue Reading →

Listen to me!

When patients volunteer to participate in a clinical trial, their voices should be heard. Reading time: 7 minutes Patty Spears A recent study (Nyrop et. al. 2019) looked at how clinicians and patients reported numbness and tingling in the patient’s hands and feet (peripheral neuropathy) after getting chemotherapy for breast cancer. They call this chemotherapy... Continue Reading →

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